Data dictionaries

Neonatal data

Maternal, antenatal and neonatal data are collected for high-risk neonates who meet ANZNN registration criteria. The registration hospital is responsible for reporting ALL relevant data in the baby's stay up to discharge to home or death, including data from neonatal transport and transfer units.

Neonatal surgical data

An extended surgical dataset has now been developed by the Australian and New Zealand Neonatal Surgical Network (ANZNSN) to better describe and care for high-risk surgical neonates. The data items described in the Surgical Data Dictionary are designed to be submitted in conjunction with the yearly neonatal data described in the ANZNN Data Dictionary. The first year of surgical data collection is for infants born in 2019.

The neonatal and surgical data dictionaries and supplementary materials are available for download for the following birth years:

2021 births

2021 Data dictionary
2021 Surgical Data dictionary ***updated 24 November 2021***
(should be used instead of 2019 Surgical Data dictionary if possible)
The data dictionaries include data labels, definitions and coding, and itemises data revisions for the birth year.

2021 Data labels - flat file
Data labels are available in .xlsx format for assisting with setting up data extract files in flat format for batch upload to the ANZNN Data Capture System. These data labels are case sensitive.

2021 Data labels - separate tables
Data labels are available in .xlsx format for assisting with setting up data extract files in separate table format for batch upload to the ANZNN Data Capture System. These data labels are case sensitive. The separate tables include the core Baby Data table and supplementary Congenital Anomalies, Infections, Surgeries, Transfers and Causes of Death tables. These supplementary tables allow multiple rows per baby as applicable.

2021 Neonatal and 2021 Surgical Data labels - separate tables
Data labels are available in .xlsx format for assisting with setting up data extract files in separate table format for batch upload to the ANZNN Data Capture System. These data labels are case sensitive.The separate tables include the core Baby Data table and supplementary Congenital Anomalies, Infections, Surgeries, Transfers and Causes of Death tables. These supplementary tables allow multiple rows per baby as applicable.
The data items from the Surgical Data Dictionary have been highlighted in yellow.

2021 Collection form
2021-2022 Surgical Collection form (should be used instead of 2019-2021 Surgical Collection form if possible)
These forms are provided for use in-house, for those units who wish to first collect their ANZNN data on hard copy forms from medical records. Please do not submit these forms to the ANZNN. Data should be entered and submitted electronically via the ANZNN Data Capture System.

2022 births

2022 Data dictionary
2021 Surgical Data dictionary ***updated 24 November 2021***
The data dictionaries include data labels, definitions and coding, and itemises data revisions for the birth year.

2022 Data labels - flat file
Data labels are available in .xlsx format for assisting with setting up data extract files in flat format for batch upload to the ANZNN Data Capture System. These data labels are case sensitive.

2022 Data labels - separate tables
Data labels are available in .xlsx format for assisting with setting up data extract files in separate table format for batch upload to the ANZNN Data Capture System. These data labels are case sensitive. The separate tables include the core Baby Data table and supplementary Congenital Anomalies, Infections, Surgeries, Transfers and Causes of Death tables. These supplementary tables allow multiple rows per baby as applicable.

2022 Neonatal and 2021 Surgical Data labels - separate tables
Data labels are available in .xlsx format for assisting with setting up data extract files in separate table format for batch upload to the ANZNN Data Capture System. These data labels are case sensitive.The separate tables include the core Baby Data table and supplementary Congenital Anomalies, Infections, Surgeries, Transfers and Causes of Death tables. These supplementary tables allow multiple rows per baby as applicable.
The data items from the Surgical Data Dictionary have been highlighted in yellow.

2022 Collection form
2021-2022 Surgical Collection form
These forms are provided for use in-house, for those units who wish to first collect their ANZNN data on hard copy forms from medical records. Please do not submit these forms to the ANZNN. Data should be entered and submitted electronically via the ANZNN Data Capture System.

2023 births

2023 Data dictionary
2023 Surgical Data dictionary
The data dictionaries include data labels, definitions and coding, and itemises data revisions for the birth year.

2023 Data labels - flat file
Data labels are available in .xlsx format for assisting with setting up data extract files in flat format for batch upload to the ANZNN Data Capture System. These data labels are case sensitive. Please note that the ordering of the data columns does not affect data submission, as long as the column headings match the ANZNN data labels exactly.

2023 Data labels - separate tables
Data labels are available in .xlsx format for assisting with setting up data extract files in separate table format for batch upload to the ANZNN Data Capture System. These data labels are case sensitive. The separate tables include the core Baby Data table and supplementary Congenital Anomalies, Infections, Surgeries, Transfers and Causes of Death tables. These supplementary tables allow multiple rows per baby as applicable. Please note that the ordering of the data columns does not affect data submission, as long as the column headings match the ANZNN data labels exactly.

2023 Neonatal and 2023 Surgical Data labels - separate tables
Data labels are available in .xlsx format for assisting with setting up data extract files in separate table format for batch upload to the ANZNN Data Capture System. These data labels are case sensitive.The separate tables include the core Baby Data table and supplementary Congenital Anomalies, Infections, Surgeries, Transfers and Causes of Death tables. These supplementary tables allow multiple rows per baby as applicable. Please note that the ordering of the data columns does not affect data submission, as long as the column headings match the ANZNN data labels exactly.
The data items from the Surgical Data Dictionary have been highlighted in yellow.

2023 Collection form
2023 Surgical Collection form
These forms are provided for use in-house, for those units who wish to first collect their ANZNN data on hard copy forms from medical records. Please do not submit these forms to the ANZNN. Data should be entered and submitted electronically via the ANZNN Data Capture System.

2024 births

2024 Data dictionary
2023 Surgical Data dictionary
The data dictionaries include data labels, definitions and coding, and itemises data revisions for the birth year.

2024 Data labels - flat file
Data labels are available in .xlsx format for assisting with setting up data extract files in flat format for batch upload to the ANZNN Data Capture System. These data labels are case sensitive. Please note that the ordering of the data columns does not affect data submission, as long as the column headings match the ANZNN data labels exactly.

2024 Data labels - separate tables
Data labels are available in .xlsx format for assisting with setting up data extract files in separate table format for batch upload to the ANZNN Data Capture System. These data labels are case sensitive. The separate tables include the core Baby Data table and supplementary Congenital Anomalies, Infections, Surgeries, Transfers and Causes of Death tables. These supplementary tables allow multiple rows per baby as applicable. Please note that the ordering of the data columns does not affect data submission, as long as the column headings match the ANZNN data labels exactly.

2024 Neonatal and 2023 Surgical Data labels - separate tables
Data labels are available in .xlsx format for assisting with setting up data extract files in separate table format for batch upload to the ANZNN Data Capture System. These data labels are case sensitive.The separate tables include the core Baby Data table and supplementary Congenital Anomalies, Infections, Surgeries, Transfers and Causes of Death tables. These supplementary tables allow multiple rows per baby as applicable. Please note that the ordering of the data columns does not affect data submission, as long as the column headings match the ANZNN data labels exactly.
The data items from the Surgical Data Dictionary have been highlighted in yellow.

2024 Collection form
2023 Surgical Collection form
These forms are provided for use in-house, for those units who wish to first collect their ANZNN data on hard copy forms from medical records. Please do not submit these forms to the ANZNN. Data should be entered and submitted electronically via the ANZNN Data Capture System.

Chronic lung disease

For babies born at <28 weeks gestation in 2016 onwards, chronic lung disease will be measured quantitatively to determine physiological chronic lung disease status and to provide a comparable indicator of lung disease severity regardless of NICU practice (modified from Quine et al. 2006 Arch Dis Child Fetal Neonatal Ed 91:F409 and Walsh et al. 2004 Pediatrics 114:1305).

The following resources are available for download and are designed to be used in conjunction with the ANZNN Data Dictionary definitions:

Shift Test / Modified Walsh Oxygen Reduction Air Trial

ANZNN Shift Test for CLD protocol template
ANZNN Shift Test for CLD protocol template
The Protocol Template has been designed to assist member units to perform the Shift Test and Modified Walsh Oxygen Reduction Air Trial. This is available in .pdf format as well as Microsoft Word format to allow modification for use in your unit (eg. adding hospital logo).

ANZNN Parent Information Sheet for lung function assessment
ANZNN Parent Information Sheet for lung function assessment
The Parent Information Sheet is available in .pdf format as well as Microsoft Word format to allow modification for use in your unit (eg. adding hospital logo).

Timely feedback data submissions

Interim data for the ANZNN neonatal dataset is collected quarterly for the purposes of providing closer to real time quarterly benchmarking, trend monitoring and feedback to individual units. Babies born at less than 32 weeks gestation are included in this data collection and data is uploaded quarterly. Data is due two months after the end of each quarter, and should include all babies who were discharged to home or who died during the quarter.

Interim data submitted for timely feedback is treated as provisional. Data is not expected to be complete or final, and is put through minimal validation processes by the ANZNN office. Data collection for timely feedback is run in parallel with annual data collection - neonatal data for each birth year cohort is required to be submitted separately.

Transport data

The Australian and New Zealand Neonatal Retrieval Network (ANZNRN) will be collecting data on infants referred to a Neonatal Transport Service. All referrals up to 28 days corrected age on the day of referral should be included. These data will then be linked to the neonatal dataset.

The retrieval data dictionary and supplementary materials are available for download:

Pilot

Retrieval Data dictionary - pilot
The pilot data collection will be for infants born in 2022 or 2023. The pilot data dictionary includes data labels, definitions and coding for the birth year.

Retrieval Data labels - pilot
Data labels are available in .xlsx format for assisting with setting up data extract files for batch upload to the ANZNN Data Capture System. These data labels are case sensitive. Please note that the ordering of the data columns does not affect data submission, as long as the column headings match the ANZNN data labels exactly.

Follow-up data

The ANZNN collects follow-up data on infants at high risk of neurological and developmental problems including cerebral palsy, blindness, deafness and developmental delay.

Follow-up at two to three years of age

Developmental outcome data is collected at 2-3 years corrected age for infants born at less than 28 weeks gestation and/or weighing less than 1,000 grams at birth who survived to discharge to home. Outcome data is also collected at 2-3 years for infants who were treated with therapeutic hypothermia during their neonatal admission. These data are then linked to the corresponding neonatal dataset. The first year of follow-up data collection was for infants born in 2009. Therapeutic hypothermia was added to the inclusion criteria from the 2017 birth cohort onwards.

The follow-up data dictionaries and supplementary materials are available for download for the following birth years:

2018 births

2018 Follow-up Data dictionary
The data dictionary includes data labels, definitions and coding, and itemises data revisions for the birth year.

2018 Follow-up Data labels
Data labels are available in .xlsx format for assisting with setting up data extract files for batch upload to the ANZNN Data Capture System. These data labels are case sensitive.

2018 Follow-up Collection form
This form is provided for use in-house, for those units who wish to first collect their ANZNN data on hard copy forms from medical records. Please do not submit these forms to the ANZNN. Data should be entered and submitted electronically via the ANZNN Data Capture System.

2019 births - should also be used for 2020 births

2019 Follow-up Data dictionary
The data dictionary includes data labels, definitions and coding, and itemises data revisions for the birth year.

2019 Follow-up Data labels
Data labels are available in .xlsx format for assisting with setting up data extract files for batch upload to the ANZNN Data Capture System. These data labels are case sensitive.

2019 Follow-up Collection form
This form is provided for use in-house, for those units who wish to first collect their ANZNN data on hard copy forms from medical records. Please do not submit these forms to the ANZNN. Data should be entered and submitted electronically via the ANZNN Data Capture System.

2021 births

2021 Follow-up Data dictionary
The data dictionary includes data labels, definitions and coding, and itemises data revisions for the birth year.

2021 Follow-up Data labels
Data labels are available in .xlsx format for assisting with setting up data extract files for batch upload to the ANZNN Data Capture System. These data labels are case sensitive.

2021 Follow-up Collection form
This form is provided for use in-house, for those units who wish to first collect their ANZNN data on hard copy forms from medical records. Please do not submit these forms to the ANZNN. Data should be entered and submitted electronically via the ANZNN Data Capture System.

2022 births

2022 Follow-up Data dictionary
The data dictionary includes data labels, definitions and coding, and itemises data revisions for the birth year.

2022 Follow-up Data labels
Data labels are available in .xlsx format for assisting with setting up data extract files for batch upload to the ANZNN Data Capture System. These data labels are case sensitive.

2022 Follow-up Collection form
This form is provided for use in-house, for those units who wish to first collect their ANZNN data on hard copy forms from medical records. Please do not submit these forms to the ANZNN. Data should be entered and submitted electronically via the ANZNN Data Capture System.

FAQ

Follow-up at four to five years of age

Outcome data is collected at 4-5 years of age for infants born at less than 28 weeks gestation and/or weighing less than 1,000 grams at birth who survived to discharge to home. The first year of follow-up data collection is for infants born in 2013.

The follow-up data dictionaries and supplementary materials are available for download for the following birth years:

2015 births - should also be used for 2016 births

2015 Follow-up 5y Data dictionary
The data dictionary includes data labels, definitions and coding, and itemises data revisions for the birth year.

2015 Follow-up 5y Data labels
Data labels are available in .xlsx format for assisting with setting up data extract files for batch upload to the ANZNN Data Capture System. These data labels are case sensitive.

2015 Follow-up 5y Collection form
This form is provided for use in-house, for those units who wish to first collect their ANZNN data on hard copy forms from medical records. Please do not submit these forms to the ANZNN. Data should be entered and submitted electronically via the ANZNN Data Capture System.

2019 births - should also be used for 2017 and 2018 births

2019 Follow-up 5y Data dictionary
The data dictionary includes data labels, definitions and coding, and itemises data revisions for the birth year.

2019 Follow-up 5y Data labels
Data labels are available in .xlsx format for assisting with setting up data extract files for batch upload to the ANZNN Data Capture System. These data labels are case sensitive.

2019 Follow-up 5y Collection form
This form is provided for use in-house, for those units who wish to first collect their ANZNN data on hard copy forms from medical records. Please do not submit these forms to the ANZNN. Data should be entered and submitted electronically via the ANZNN Data Capture System.

Data submission

Upcoming deadlines

2-3 year outcomes for 2020 births

  • Due 31st May 2024

4-5 year outcomes for 2018 births

  • Due 30th August 2024

Neonatal data for 2023 births

  • Due 31st July 2024

Timely feedback data for 2023 discharge cohort

  • Quarter 1 due 31st May 2023
  • Quarter 2 due 31st August 2023
  • Quarter 3 due 30th November 2023
  • Quarter 4 due 29th February 2024

All data should be validated and submitted via the ANZNN Data Capture System.

Related pages

Registration criteria

Contact

Email: anznn@unsw.edu.au

Copyright 2015 Australian and New Zealand Neonatal Network